Brain Injury: Where to go for help

Brain Injury Association of America
8201 Greensboro Drive, Suite 611
McLean, VA 22102
Family Help Line – 1-800-444-6443
703-761-0750
e-mail: familyhelpline@biausa.org
www.biausa.org
Family Help Line provides information on traumatic brain injury for survivors, families of survivors, and caregivers. There are a variety of brochures and videotapes available with information about prevention, returning home, family issues, caregiving, and other topics.

Head Injury Hotline
212 Pioneer Building
Seattle, WA 98104
206-621-8558
www.headinjury.com
e-mail: brain@headinjury.com
Provides information on living with brain injury, including consultations and referrals to health care, legal professionals, and support groups. Established by the Phoenix Project, a TBI information clearinghouse. Web site contains hotline information.

American Stroke Association
7272 Greenville Avenue
Dallas, TX 75231
1-888-4-STROKE
www.strokeassociation.org

National Stroke Association
9707 E. Easter Lane
Englewood, CO 80112-3747
1-800-STROKES
www.stroke.org

American Brain Tumor Association
2720 River Road, Suite 146
Des Plaines, IL 60018
847-827-9910
e-mail: info@abta.org
www.abta.org


Community Resources

• Case managers or social workers at your local hospital.
• Human resources department where your loved one worked.
• State and national brain injury organizations.
• Local library.
• Local support groups.
• Your church.
• Family Caregiver Alliance (local and national).
• The Department of Rehabilitation Services in your state.
• United Way.
Injured brain

National Brain Tumor Society
National Brain Tumor Society
http://www.braintumor.org
E-mail: info@braintumor.org

National Brain Tumor Society brings together the best in brain tumor research and supportive patient services. We offer hope to patients, families, and caregivers during every stage of the treatment journey. We invest wisely and strategically in innovative research that will lead to advances and ultimately to a cure.

East Coast Office
124 Watertown Street, Suite 2D
Watertown, MA 02472
Phone: 617 924 9997
Fax: 617 924 9998

West Coast Office
22 Battery Street, Suite 612
San Francisco, CA 94111-5520
Phone: 415 834 9970
Fax: 415 834 9980

Patient Services
800 934 2873

Toll-free
800 770 8287

The Family Caregiver Alliance
180 Montgomery St, Suite 1100
San Francisco, CA 94104
415-434-3388
1-800-445-8106
e-mail: info@caregiver.org
www.caregiver.org
Assists families of persons with chronic or progressive brain disorders. Distributes information on caregiving and care of people with cognitive impairments. Web site contains fact sheets, articles, and on-line support via e-mail. Sections on diagnoses and fact sheets are especially helpful.



Brain Injury: A guide for family and friends


Table of Contents

• What is a Brain Injury?
• How Bad Is It?
• How the Brain Functions
• Common Problems During Early Recovery
• The Intensive Care Unit (ICU)
• Understanding Coma
• How Does an Injured Brain Heal?
• How You Can Help With Recovery
• Where Will the Journey Go From Here?
• How Will I Ever Get Through This?
• Where to Go for Help
• Books for Families Coping With Brain Injury